colinportnuff ([info]colinportnuff) wrote,
@ 2006-05-01 18:10:00
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It's Blogging Against Disabilism Day!
Blogging Against Disablism Day

Two posts today for Blogging Against Disabilism Day. Today is the day that I and many other bloggers take up pen (or keyboard if you insist on being literal) to get people to think about discrimination against people with disabilities.

The post below this one I wrote late last night (early this morning), before I actually remembered about the Day. But it is actually the better of the two, in my opinion.

I won't win any prizes for the eloquence today, and if you're here from Blogging Against Disabilism, I'm sure you're reading many better ones. In fact, I actually like last night's post better for this day. If you are one of my regular readers, do go visit the Blogging Against Disabilism site and do some browsing.

My experience with Disabilism is new, since I've only been disabled for a year. My experience also is a changing one, not because the world is changing, but because my disability is progressive. Today I cannot speak. In a few months I'll be in a wheelchair.

But for now, I'll visit the issue of a couple of assumptions people make.

1. When encountering a person who doesn't speak, many people assume we are deaf or retarded or both. The assumption of deafness is based in their experience, but not logic. Because many people who are Deaf don't speak, the assumption is that it goes both ways. If A then B, therefore: If B then A. No sense to this, but it is real. The assumption of mental retardation is not even based in experience -- this one makes no sense whatsoever.

2. When encountering a person who doesn't speak, is in a wheelchair and has spastic limb movements, many people assume the person is retarded. This one doesn't even have a basis in experience. Why do people assume that people in wheelchairs are retarded?

The common thread? Physical disability is automatically linked in people's minds with mental retardation. There is no basis in fact for this linkage, but it is there, and it is very difficult to overcome.

I remember one day when I still thought I had a chance of being understood at least with simple utterances like Hello. I approached a table outside my restaurant and while taking a few dishes away, said hello to the party sitting there. I guess it was not intelligible, because one of the women, a young professional, barked back at me unintelligibly, making fun of my speech. It was the first episode of outright rudeness I had experienced, and it made me see red. And they hadn't even bought anything from my restaurant. They had hot dogs from next door and just took one of my tables.



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[info]wakasplat
2006-05-02 02:33 am UTC (link)
I actually get less "assumptions that I'm retarded" (actually, it's more like "assumptions that I'm something that doesn't even exist in the real world, that most people equate with the word 'retarded'") if I'm in a wheelchair.

I'm a part-time chair user, and I can't speak. (For mostly-unrelated reasons, at that.)

And, I've noticed something. If I'm in a chair, all of my oddities (which extend way beyond speech, I'm autistic) are somehow assumed to be "about the chair". I mean, not always, but that's how it goes. I've even had people assume I have CP, which I don't have, because of the chair.

If I'm outside a chair, people don't have the chair to attribute all those oddities to, so they're much more likely to view me as... whatever that is that they view me as.

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[info]colinportnuff
2006-05-02 06:00 am UTC (link)
Very interesting and provocative comment. Thanks.

I wonder what it is that they view you as. I wonder what they view me as.

I definitely feel that people treat me very differently, according to whether I have my cane or am in a wheelchair, or walking carefully and slowly with neither. But I can't quite describe it. I do feel though that in any of the three situations, when it becomes apparent that I don't speak, it all changes again.

I guess it makes sense -- people integrate all the clues and file us neatly in a folder that makes sense to them. I don't think it's necessarily a conscious process. I think the mind strains to take unfamiliar information and fit it into its existing paradigms. It takes something really momentous or impactful to break or shift those paradigms.

Like getting to know us.

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The Paradigm Shift
[info]davidinsisters
2006-05-02 06:47 am UTC (link)
I think the paradigm is often an outgrowth, often unconscious, of our life experience. I vividly recall, when growing up in NY, a brother of one of my closest friends had cerebral palsey and was confined to a wheelchair. He was physically disabled, but mentally as sharp as a tack. There was no such thing back then as "mainstreaming," so he went to a special school. Because of the lack of mainstreaming, the interaction between those with conventional disabilities, and those without,was minimal and contribued, I think to the paradigm where people were not comfortable with someone different than themselves.

I learned many things from Jay, but especially that the disabilities of the mind and body can be completely distinct. I also came to know Jay very well, and the initial discomfort was quickly replaced with a warm and fond friendship. The disability was displaced by the person. I think as a society, the more we do to educate and integrate, the greater the chances of a paradigm shift to reduce the alarming and disgraceful incidences of disibilism you describe.

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(Anonymous)
2006-05-05 04:40 am UTC (link)
More than 20 years ago I fell down some stairs in the wintery dark at the retreat center up by Lewis and Clark. I was in my early 30s. For a while I got around with crutches and, although my back porch is a good deal more athletic than I ever was, suddenly people treated me like a warrior returning from honorable battle with a black diamond at Mt Hood. People assumed that it was a skiing injury and practically congratulated me!

It happened that I needed to use a cane for a while after I was done with crutches. Immediately I noticed that people began speaking s-l-o-w-l-y to me and VERY LOUDLY. It is always interesting to read about the elaborate exercises used to let people experience a simulation of disability. It would be simpler and not much less effective, I think, just to push people down a short flight of stairs (why should the experience be simulated, entirely?) and hand them a cane.

Oh -- it's Patricia here, just down the road from Boulder. Very unusually, today it has been raining.

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Thanks a lot for what You are doing!
(Anonymous)
2007-01-31 04:47 am UTC (link)
Great design, useful info!This resourse is great!Keep it up!With the best regards!
Frank

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